Pathfinders Neuromuscular Alliance Request

Organisation Description

Pathfinders Neuromuscular Alliance is a user-led organisation for people with muscular dystrophy and related conditions. We provide advice, advocacy and support, and facilitate further peer support, helping people take control of their lives, make their own choices, and have a good quality of life. We run programmes designed to build skills and support people with this, as well as social opportunities, a formal advocacy service, and campaigning. We believe that having a muscle-weakening condition shouldn’t be a barrier to leading a fulfilled and self-directed life, and work to make that change in society.

What are they looking for?

We are completing a process of updating our logo and website, professionalising the organisation whilst keeping being led by people with the conditions we represent at the heart of everything we do. We are aware that in the wider sphere, there are a number of charities with clear missions around treating and curing muscular dystrophies and related conditions, but our focus is on living and having a good quality of life as an adult, rather than on reaching for a cure. This makes it hard to distil our message for community fundraising, and we can struggle to communicate and market it effectively when we are a smaller organisation with a more complex mission. It can also impact on our strategic and future planning. We would like some support in identifying exactly what our vision, mission and values are and how we can communicate them with community, corporate, and grant fundraising, in a way that highlights what's unique about us and focuses on why people should support us and our work.